fa تاثیر اجرای یک برنامه مراقبتی بر بارمراقبتی مادران کودکان تحت عمل جراحی بیماری مادرزادی قلب تخصصي Special پژوهشي Research <div style="text-align: justify;"><strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">مقدمه</span></span></strong><span style="font-family:mitra;"><span style="font-size:12.0pt;"> :بیماری</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مادرزادی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">قلب</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">دارای</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">اثرات</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">متعددی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بر</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">روی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">همه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">اعضای</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">خانواده</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">است</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">ومراقبت</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">از</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">این</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کودکان</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">می‌تواند</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بار</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">زیادی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بر</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">والدین</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بالاخص</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مادرتحمیل</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کند</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">.</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;"> این</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مطالعه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">با</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">هدف</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">تعیین</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">تأثیر</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">اجرای</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">یک</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">برنامه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بر</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بار</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مادران</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">این</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کودکان، طراحی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">واجرا</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">شده</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">است</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">.</span></span><br> <strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">روش</span></span></strong><strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">:</span></span></strong><span style="font-family:mitra;"><span style="font-size:12.0pt;"> تحقیق حاضر یک مطالعه نیمه تجربی است.واحدهای موردپژوهش شامل 60 نفر از مادران کودکان تحت عمل جراحی بیماری مادرزادی قلب می باشند که با روش نمونه گیری در دسترس انتخاب شدند.&nbsp; 30نفرواحد مورد پژوهش در گروه شاهد و 30 نفرواحد مورد پژوهش در گروه مداخله&nbsp; قرار گرفتند. مدت نمونه گیری سه ماه در زمستان 1395 ودر بیمارستان چمران وابسته به دانشگاه علوم پزشکی&nbsp;&nbsp; اصفهان انجام شد.در ابتدا بارمراقبتی مادران از طریق پرسشنامه بار مراقبتی </span></span><span dir="LTR"><span style="font-family:sakkal majalla;"><span style="font-size:12.0pt;">ZARIT</span></span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;"> اندازه گیری شد.چهار هفته پس از مداخله بارمراقبتی مجداداً در هر دو گروه اندازه گیری شد. </span></span><br> <strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">یافته‌ها</span></span></strong><strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">:</span></span></strong><span style="font-family:mitra;"><span style="font-size:12.0pt;"> &nbsp;میانگین نمره</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بارمراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">در</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">گروه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">&nbsp;شاهد وگروه مداخله قبل</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">از</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مداخله</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">به</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">ترتیب</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;"> 56/3 </span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">و 55/5بود(</span></span><span dir="LTR"><span style="font-family:sakkal majalla;"><span style="font-size:12.0pt;">P>0.05</span></span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">).</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;"> پس</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">از</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مداخله، بارمراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">گروه </span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">شاهد وگروه مداخله </span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">به</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">ترتیب 3</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">/57 </span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">و 3</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">/43 </span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">شد</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">که</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">نشان</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">دهنده</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کاهش</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">معنادار</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بارمراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">در</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">گروه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مداخله بود </span></span><span dir="LTR"><span style="font-family:sakkal majalla;"><span style="font-size:12.0pt;">(</span></span></span><span dir="LTR"><span style="font-family:times new roman,serif;"><span style="font-size:12.0pt;">P<0.05)</span></span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">).</span></span><br> <strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">نتیجه</span></span></strong> <strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">گیری</span></span></strong><strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">:</span></span></strong><span style="font-family:mitra;"><span style="font-size:12.0pt;">اجرای</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">برنامه</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">می</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">تواند به</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">عنوان</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">راهکاری</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مؤثر</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">جهت</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کاهش</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">بارمراقبتی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مادران</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">کودکان</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">مادرزادی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">قلب</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">تحت</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">عمل</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">جراحی</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">قلب</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">پیشنهاد</span></span> <span style="font-family:mitra;"><span style="font-size:12.0pt;">شود</span></span><span style="font-family:mitra;"><span style="font-size:12.0pt;">.</span></span></div> <div style="text-align: justify;"><strong>Introduction : </strong>Congenital heart disease is one of the most common congenital disorders in children.&nbsp; It has many adverse effects on all family members. In particular, caregiving of these children can be a great burden on the parents, especially mothers.&nbsp; This study aimed to determine the effect of a care program on the burden of caregiving mothers of these children.<br> <strong>Method:</strong>This study is a quasi-experimental research, conducted for three months on 60 caregiving mothers (30 mothers in the control group and 30 in the experimental group) of children undergoing congenital heart disease surgery, selected via convenient sampling in Chamran hospital &nbsp;of Medical Sciences university in isfahan from Jan 2017 for three months. the beginning of the study,&nbsp; the burden of care was measured through&nbsp; ZARIT questionnaire. Four weeks after the intervention, the burden of care was measured again in both groups.&nbsp;<br> <strong>Findings</strong>:Mean scores of caregivers&rsquo; burden&nbsp; were 56.3 and 55.5 in the control and experimental groups before the intervention (P <strong><span dir="RTL"><</span></strong>0.05) and 57.3 and 43.5 after the intervention respectively. These findings indicated a significant reduction in the burden of care in the experimental group (P < 0.05).<br> <strong>Conclusion</strong>: Care programis recommended as an effective solution to reduce burden of care of mothers of children undergoing congenital heart disease surgery.</div> برنامه مراقبتی, بار مراقبتی, جراحی قلب ,بیماری مادرزادی قلب Care Program, Caregiver, Burden, Cardiac Surgery, Congenital Heart Disease 41 46 http://jpen.ir/browse.php?a_code=A-10-281-1&slc_lang=fa&sid=1 Asghar khalifezadeh اصغر خلیفه زاده اصفهانی Khalifezadeh@nm.mui.ac.ir 10031947532846004860 10031947532846004860 Yes Academic Member, Department of Critical Care Nursing , School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran هیئت علمی دانشکده پرستاری ومامایی دانشگاه علوم پزشکی اصفهان ،اصفهان،ایران zahra gheisarian زهرا قیصریان z.gheysarian@gmail.com 10031947532846004861 10031947532846004861 No MSc Student of Nursing, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran. دانشجوی ارشد مراقبت های ویژه،دانشکده پرستاری و مامایی اصفهان ،اصفهان ،ایران hamid bigdelian حمید بیگدلیان bigdelian@med.mui.ac.ir 10031947532846004862 10031947532846004862 No Professor of Congenital Heart Surgery and head of Congenital Heart Surgery Ward of Chamran Hospital isfahan University of Medical Sciences, Isfahan, Iran استادیار وجراح قلب کودکان دانشگاه علوم پزشکی اصفهان ،اصفهان ،ایران