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:: Volume 6, Issue 2 (winter 2019) ::
JPEN 2019, 6(2): 68-75 Back to browse issues page
Analysis the experiences of mothers in caring of a disabled child: A phenomenological Study
Anahita Khodabakhshi-koolaee , Mahbobeh Aghakhani koshki , Neda Kalhor
Assistant Professor, Department of Psychology and Educational Sciences, Faculty of Humanities, Khatam University, Tehran, Iran , a.khodabakhshid@khatam.ac.ir
Abstract:   (967 Views)
Introduction: The family as a social system impact of disrupt of every member of the system. The existence of a child with disabilities result in irreparable harm to the family and mothers suffers more other members. Because of the central role of the mother at home and interaction with the child, she encountered the psychological stress. Therefore, the present study conducted to analysis the experiences of mothers in caring of a disabled child.
Methods: The research method was based on qualitative method and with descriptive phenomenological type. The participants were selected by sampling by target by 2018 in Roadbar city. For gathering information used the semi-structured interview. In order to achieve the research goals, gathering data were continued until Theoretical saturation by 18 mothers with disabled children who were register in the Rudbar welfare organization. The interviews were analyzed by seven step Colaizzi’s method.
Results: The findings of this study showed that the experienced of mothers can be classified as four main Contents including; negative feelings and reactions, concern about the child’s future, stigma toward disability and pain and suffers of mothers from inadequate professional support and financial resources.
Conclusion:  the findings indicated that the mothers with disable child has many problems and suffers the painful experiences. These issues and concerns about her child’s is harder when mother lives in small and countryside. It seems that the psycho-educational classes could be developing the life skills and self-efficacy in mothers. On other hand, awareness of society for reducing the stigma and seeking for advocacy of mothers and disabled person should be helpful.
Keywords: mother, caring, disable, phenomenology
Full-Text [PDF 767 kb]   (332 Downloads)    
Type of Study: Research | Subject: Special
Received: 2019/04/10 | Accepted: 2019/05/28 | Published: 2019/12/1
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khodabakhshi-koolaee A, aghakhani koshki M, kalhor N. Analysis the experiences of mothers in caring of a disabled child: A phenomenological Study. JPEN. 2019; 6 (2) :68-75
URL: http://jpen.ir/article-1-425-en.html

Volume 6, Issue 2 (winter 2019) Back to browse issues page
نشریه پرستاری کودکان و نوزادان Journal of Pediatric Nursing
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