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The effect of continuous care model on self-efficacy and care burden of parents
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Simin Safiri   , Maryam Moghimian , Narges Sadeghi , Lida Sasani |
| PhD in Nursing, Department of Nursing, Community Health Research Center, Islamic Azad University, Isfahan Branch (Khorasgan), Isfahan, Iran , N45sadeghi@yahoo.com |
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Abstract: (1111 Views) |
Introduction: Parents of children with phenylketonuria experience a significant care burden due to the provision of continuous care. It will be easier to bear if parents are self-efficacious in providing care. Follow-up care can be supportive in this regard. This study was conducted to determine the effect of implementing the continuous care model on the self-efficacy and care burden of parents with a child with phenylketonuria.
Method: The present study is a semi-experimental study that was conducted in 2019 at the clinic of Amin Shahr Hospital in Isfahan. 72 parents of children with phenylketonuria were first selected by the available method and randomly assigned to two groups of 36 people, test and control. In the test group, the follow-up care model was implemented in four months. The control group received the usual training. The data collection tool was a demographic questionnaire, Zarit care pressure, and Domka parental self-efficacy, which the participants answered before and one month after the study.
Results: In the test group, the average self-efficacy after the study was significantly higher than before, but there was no significant difference in the control group (P < 0.05). The average self-efficacy before the intervention was not significantly different between the two groups. The average care burden after the intervention was significantly lower than before in the test group, but there was no significant difference in the control group (P < 0.05). There was no significant difference between the two groups in the average care burden before the intervention. Still, after the intervention in the test group, it was significantly lower than the control group (P<0.05).
Conclusion: The implementation of follow-up care for parents with a child with phenylketonuria increases self-efficacy and reduces the burden of care. Therefore, it is suggested to use this model during discharge for this target group. |
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| Keywords: self-efficacy, care burden, phenylketonuria, parent, follow-up care |
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Full-Text [PDF 365 kb]
(308 Downloads)
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Type of Study: Research |
Subject:
Special
Received: 2022/06/24 | Accepted: 2024/06/5 | Published: 2024/06/30
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